Ron Romasanta

We’ll be here next week!
Test shotsss

We’ll be here next week!

Test shotsss

Full Frame

Full Frame

I would title this video: Take that Rare Genetic Disorder! We are the human spirit!

This is the story of our daughter, Eden Grace.

Early in her life she was diagnosed with a rare genetic disorder that specialists knew little about. The prognosis was physical and developmental delays - and it was unknown if she would ever be strong enough to crawl or walk on her own. It was heartbreaking to hear, but we chose to be joyful no matter the outcome.

Sniff sniff

Sniff sniff

Thank you Charles O’Rear